A Continuing Fight for Life: Baby Luseh’s Story

Humanitarian work often involves housing, education, or helping families rebuild livelihoods. But sometimes, it comes down to something even more fundamental, a child’s chance to live.

Baby Luseh is one of those stories.

Luseh was born with a congenital heart condition. Her parents are originally from Shushi, a city they lost after the 2020 war. Like many families from Artsakh, they were already living with displacement and uncertainty when another crisis emerged, their newborn daughter needed life-saving medical care.

In September 2023, during the blockade of Artsakh, Lorik Humanitarian Fund launched what would become one of the final fundraising efforts we carried out while still in Artsakh. Despite the severe restrictions and isolation at the time, supporters came together and helped us raise over $10,000 to send Luseh to Italy, where doctors were able to perform the heart surgery she urgently needed.

Thankfully, that operation was successful.

For a moment, it felt like one small victory during a period filled with hardship and uncertainty.

But the family’s struggles did not end there.

After returning to Armenia, Luseh’s family encountered a devastating bureaucratic obstacle. Despite being from Artsakh, the Armenian government did not recognize them as forcibly displaced, excluding them from aid and support programs intended for displaced families.

Without access to assistance or stability, the family eventually had no choice but to relocate to Hungary.

Today, Luseh faces another challenge.

Doctors have determined that she now requires an additional specialized heart surgery. The family has been in consultation with physicians at Stanford University in California, who have reviewed her case and advised on the procedure and the possibility of performing it there.

At this moment, we do not yet know how this will happen.

We do not yet know what the logistical path will look like, or how such a complex medical process can be organized. What we do know is that we cannot ignore this case simply because it is difficult.

Luseh is a child from Artsakh whose life has already been shaped by war, displacement, and uncertainty. We were able to help her once, one of the final acts of good we managed to accomplish while still in Artsakh during the blockade.

Now we are trying to help again.

Lorik Humanitarian Fund has begun reaching out to medical professionals we know personally, seeking guidance on what steps might be possible and what support may be needed.

This is not something we can solve alone.

If you are a medical professional, organization, institution, or individual who may be able to advise, assist, or help connect us to resources, we ask that you please reach out.

We are not going to walk away from this case simply because of the price tag or the complications involved.

Some stories deserve persistence.

And this little girl deserves every chance she can get

If you can help, please contact us.

info@LorikHF.org